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Best regards
Zmags
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME FOUNDATION, UK AND IRELAND
R
REACHING OUT
October 2022
BABY, IT'S A MIRACLE!
SEE PAGE 10
BEHA VIOURAL
SURVEY –
CAN YOU BOOK
HELP? FOR THE
PAGE 3 OCTOBER
CONFERENCE
PAGE 2
2 NEWS
Get all the latest news, information, and research on our website: www.cdls.org.uk
MISSION
“The CdLS Foundation UK & Ireland is a
family support organisation which exists to
ensure early and accurate diagnosis of
CdLS throughout the world, promoting
research, and enabling individuals,
families, friends and professionals make
informed decisions and plan for the
affected person's present and future.”
The Foundation is a registered charity in
England and Wales (no 1054033) and a
member of the World Federation of CdLS
Support Groups.
CdLS
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME
2 NEWS Get all the latest news, informatio
NEWS 3 NEW CHALLENGES FOR US ALL BRINGING
4 TRUSTEES Get all the latest news, inform
FAMILIES / AWARENESS DAY 5 Awarene
6 AWARENESS DAY Get all the latest new
AWARENESS DAY 7 ENESS fundraisers goi
8 AWARENESS DAY Get all the latest news,
SIBLINGS 9 Loving my sister for who she
10 F A M I L I E S Get all the latest news, in
F A M I L I E S 11
12 N E W S Get all the latest news, informatio