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Best regards
Zmags
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME FOUNDATION, UK AND IRELAND
R
REACHING OUT
April 2021
THE JOURNEY
THROUGH LOCKDOWN
HOW FAMILIES HAVE COPED WITH THE PANDEMIC
PLAN
YOUR
AWARENESS
DAY
PAGE 2
2 news
Get all the latest news, information, and research on our website: www.cdls.org.uk
MISSION
“The CdLS Foundation UK & Ireland is a
family support organisation which exists to
ensure early and accurate diagnosis of
CdLS throughout the world, promoting
research, and enabling individuals,
families, friends and professionals make
informed decisions and plan for the
affected person's present and future.”
The Foundation is a registered charity in
England and Wales (no 1054033) and a
member of the World Federation of CdLS
Support Groups.
CdLS Foundation UK & Ireland
PO Box 8368
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME
2 news Get all the latest news, informatio
news 3 FOR SO MANY we are still here for
4 SCAT Get all the latest news, informatio
SCAT 5
6 families Get all the latest news, inform
families 7 eryone – but they are the chall
8 inspiration Get all the latest news, inf
inspiration 9
10 i n m e m o r y Get all the latest news,
f a m i l i e s 11 A `Min
12 f u n d r a i s i n g Get all the latest ne