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THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME FOUNDATION, UK AND IRELAND
R
REACHING OUT
September 2018
PURPLE
REIGN...
THE DAY CdLS COLOURS BOOSTED AWARENESS
ALL OVER THE UK – AND ACROSS THE WORLD
PAGE 4
BOOK
NOW FOR
CAMBRIDGE
CONFERENCE
PAGE 3
2 news
Get all the latest news, information, and research on our website: www.cdls.org.uk
CdLS FOUNDATION
UK AND IRELAND
The Foundation is a registered charity in the
UK (no 1054033) and part of the global
federation of CdLS family support groups
around the world.
CdLS Foundation UK & Ireland
6 Vale Close, Harpenden
Hertfordhire, AL5 3LX
ACTING OFFICE ADMINISTRATOR
Andrew Borge
Tel: 01375 376439
E-mail: info@cdls.org.uk
Web: www.cdls.org.uk
BOARD OF TRUSTEES
Elected officials
Chairman – David Axtell (Essex)<
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME
2 news Get all the latest news, informatio
news 3 to a brand new level... I am
4 campaigns Get all the latest news, infor
campaigns 5 the Republic of Ireland, whic
6 campaigns Get all the latest news, infor
campaigns 7 Purple and proud... The
8 UK conference report Get all the lat
UK conference report 9 We always lea
10 U K c o n f e r e n c e r e p o r t Get
U K c o n f e r e n c e r e p o r t 11
12 U K c o n f e r e n c e r e p o r t Get
i n m e m o r y 13 Eclipse, a ray of sun
14 f u n d r a i s i n g Get all the latest ne
f u n d r a i s i n g 15 £3,000 for the Foun
16 f u n d r a i s i n g Get all the latest ne