If you are visually impaired or blind, you can visit the PDF version by Pressing CONTROL + ALT + 4
You need a JavaScript-enabled browser to view this Publication
Please follow these steps to view the Publication:
Enable JavaScript in your browser
Refresh this page
Best regards
Zmags
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME FOUNDATION, UK AND IRELAND
R
REACHING OUT
May 2022
PUT CdLS
IN THE
SPOTLIGHT
YOUR CHANCE TO BOOST AWARENESS ON MAY 14
2 NEWS
Get all the latest news, information, and research on our website: www.cdls.org.uk
MISSION
“The CdLS Foundation UK & Ireland is a
family support organisation which exists to
ensure early and accurate diagnosis of
CdLS throughout the world, promoting
research, and enabling individuals,
families, friends and professionals make
informed decisions and plan for the
affected person's present and future.”
The Foundation is a registered charity in
England and Wales (no 1054033) and a
member of the World Federation of CdLS
Support Groups.
CdLS Foundation UK & Ireland
PO Box 8368
Ripley, Derbyshire DE5 4DA
Tel: 01375 376439<
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME
2 NEWS Get all the latest news, informatio
NEWS 3 OPEN TO ALL FAMILIES One part
4 SCAT Get all the latest news, informatio
FAMILIES 5 WHY RENAE IS ELLIE'S `LITTLE
6 CONFERENCE REPORT Get all the latest
CONFERENCE REPORT 7 lly able to hold an S c
8 CONFERENCE REPORT Get all the latest n
CONFERENCE REPORT 9 WHY MATTEO'S PARENTS
10 F A M I L I E S Get all the latest news, in
F A M I L I E S 11
12 N E W S Get all the latest news, informatio