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Best regards
Zmags
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME FOUNDATION, UK AND IRELAND
HOW TO
BOOK FOR
THE OCTOBER
CONFERENCE
PAGE 2
R
REACHING OUT
JUNE 2025
PEAK
PERFORMANCE
BRUSH UP
ON DENT AL
HEAL TH
PAGE 7
– SEE PAGE 12
2 NEWS
Get all the latest news, information, and research on our website: www.cdls.org.uk
MISSION
“The CdLS Foundation UK & Ireland is a
family support organisation which exists to
ensure early and accurate diagnosis of
CdLS throughout the world, promoting
research, and enabling individuals,
families, friends and professionals make
informed decisions and plan for the
affected person's present and future.”
The Foundation is a registered charity in
England and Wales (no 1054033) and a
member of the World Federation of CdLS
Support Groups.
CdLS Foundati
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME
2 NEWS Get all the latest news, informatio
NEWS 3 AFTER A TOUGH YEAR FOR CdLS doing
4 RESEARCH Get all the latest news, inform
RESEARCH 5 Dr Hayley Crawford, an Asso
6 CARE Get all the latest news, informatio
HEALTH 7 Get your teeth into dental ca
8 UK CONFERENCE REPORT Get all the l
UK CONFERENCE REPORT 9 D IN LEEDS lace in
10 U K C O N F E R E N C E R E P O R T Get
U K C O N F E R E N C E R E P O R T 11 De
12 F U N D R A I S I N G Get all the latest ne
F U N D R A I S I N G 13 CdLS on Everest
14 F U N D R A I S I N G Get all the latest ne
F U N D R A I S I N G 15 CdLS the winner in
16 F U N D R A I S I N G Get all the latest ne