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Best regards
Zmags
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME FOUNDATION, UK AND IRELAND
R
REACHING OUT
September 2019
TOP
SCAT
AFTER 25 YEARS, CHRIS OLIVER STEPS DOWN
AS CHAIR OF THE SCIENTIFIC & CLINICAL
ADVISORY TEAM. MEET THE NEW CHAIRS.
PAGE 4
BOOK
NOW FOR
MANCHESTER
CONFERENCE
PAGE 2
2 news
Get all the latest news, information, and research on our website: www.cdls.org.uk
MISSION
“The CdLS Foundation UK & Ireland is a
family support organisation which exists to
ensure early and accurate diagnosis of
CdLS throughout the world, promoting
research, and enabling individuals,
families, friends and professionals make
informed decisions and plan for the
affected person's present and future.”
The Foundation is a registered charity in
England and Wales (no 1054033) and a
member of the World Fede
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME
2 news Get all the latest news, informatio
news 3 Lancashire hot spot HOTEL DETAILS
4 news Get all the latest news, informatio
awareness day 5 CdLS International Aware
6 awareness day Get all the latest news,
awareness day 7 Friends and family fund
8 UK conference report Get all the lat
UK conference report 9 E IN BELFAST In
10 U K c o n f e r e n c e r e p o r t Get
U K c o n f e r e n c e r e p o r t 11
12 U K c o n f e r e n c e r e p o r t Get
U K c o n f e r e n c e r e p o r t 13
14 f u n d r a i s i n g Get all the latest ne
f u n d r a i s i n g 15 CdLS THAT'S THE WI
16 p e o p l e Get all the latest news, inform