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Best regards
Zmags
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME FOUNDATION, UK AND IRELAND
R
REACHING OUT
APRIL 2024
STANDING IN
THE SHADOWS
– SEE PAGE 6
HOW TO
BOOK FOR
THE OCTOBER
CONFERENCE
PAGE 2
FAMILY
FUNDAY–
JUNE 29
PAGE 3
2 NEWS
Get all the latest news, information, and research on our website: www.cdls.org.uk
MISSION
“The CdLS Foundation UK & Ireland is a
family support organisation which exists to
ensure early and accurate diagnosis of
CdLS throughout the world, promoting
research, and enabling individuals,
families, friends and professionals make
informed decisions and plan for the
affected person's present and future.”
The Foundation is a registered charity in
England and Wales (no 1054033) and a
member of the World Federation of CdLS
Support Groups.
CdLS Founda
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME
2 NEWS Get all the latest news, informatio
NEWS 3 TO MOVE WITH THE TIMES We have
4 WORLD CONFERENCE REPORT Get all the
WORLD CONFERENCE REPORT 5
6 UK CONFERENCE REPORT Get all the la
UK CONFERENCE REPORT 7 OMFORT ll the way
8 UK CONFERENCE REPORT Get all the lat
UK CONFERENCE REPORT 9 Olivia with
10 U K C O N F E R E N C E R E P O R T Get
S C A T 11 The foundation is pleased to introd
12 F U N D R A I S I N G Get all the latest ne