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Best regards
Zmags
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME FOUNDATION, UK AND IRELAND
R
REACHING OUT
SEPTEMBER 2023
WHERE
THERE'S
A WILL...
THERE'S A WAY TO SUPPORT
THE CdLS FOUNDATION
– SEE PAGE 10
HOW TO
BOOK FOR
THE OCTOBER
CONFERENCE
PAGE 3
2 NEWS
Get all the latest news, information, and research on our website: www.cdls.org.uk
MISSION
“The CdLS Foundation UK & Ireland is a
family support organisation which exists to
ensure early and accurate diagnosis of
CdLS throughout the world, promoting
research, and enabling individuals,
families, friends and professionals make
informed decisions and plan for the
affected person's present and future.”
The Foundation is a registered charity in
England and Wales (no 1054033) and a
member of the World Federation of CdLS
Support Groups.
THE NEWSLETTER OF THE CORNELIA DE LANGE SYNDROME
2 NEWS Get all the latest news, informatio
NEWS 3 HELP US FIND ANSWERS IMAGE: FREEP
4 SCAT Get all the latest news, informatio
RESEARCH 5 Invitation to take part in Cd
6 UK CONFERENCE REPORT
UK CONFERENCE REPORT 7
8 UK CONFERENCE REPORT Get all the lat
UK CONFERENCE REPORT 9 It's the quiet
10 I N M E M O R Y Get all the latest news,
I N M E M O R Y 11 DONATES £23,000 TO FOUND
12 F U N D R A I S I N G Get all the latest ne